Disabilities/Special Needs Organizations

Phone: (202) 600-3480

Phone: (202) 401-4634

Email: info@autismnow.org

The major goal of the Developmental Disabilities Programs of the ADD is to partner with State governments, local communities, and the private sector to ensure that individuals with developmental disabilities and their families participate in the design of -- and have access to -- culturally competent services, support, and other assistance and opportunities that promote independence, productivity, and inclusion in the community. The programs address all facets of the life cycle: diagnosis, early intervention, therapy, education, training, employment, and community living and leisure activities.

nadid: 11089

Phone: (703) 256-2084

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

nadid: 11103

Toll-Free: (800) 599-8810

Email: info@achancetoparent.net

A nonprofit dedicated to enhancing the lives of parents living with learning difficulties and their families. It brings together researchers, practitioners, and self-advocates to build the capacity of communities and families to support and improve outcomes for parents with intellectual disabilities. The association’s work mainly centers around education, advocacy at the local and national level, direct support for parents and professionals, and resource sharing.

nadid: 30323

Phone: (202) 403-7937

Email: smccartney@aaicama.org

The Association of Administrators of the Interstate Compact on Adoption and Medical Assistance facilitates the administration of the ICAMA. The Compact is the legal mechanism by which member States regulate and coordinate the interstate delivery of services to children with special needs who are adopted pursuant to adoption assistance agreements. The Association provides technical and legal assistance, education and training, and materials on practice and policy issues.

nadid: 11082

Phone: (301) 588-8252

Fax: (301) 588-2842

Email: aucdinfo@aucd.org

The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) promotes and supports the national interdisciplinary network of university centers on disabilities. The network includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs, and Intellectual and Developmental Disability Research Centers (DDRC). Through its members, AUCD serves as a resource for local, State, national, and international agencies, organizations, and policy makers concerned about individuals with developmental and other disabilities and their families.

nadid: 11083

Toll-Free: (888) 288-4762

Email: familyservices@autismspeaks.org

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

nadid: 29806

Phone: (612) 624-4231

Toll-Free: (800) 779-8636

Fax: (612) 624-3744

Email: cascw@umn.edu

General Scope: The Center for Advanced Studies in Child Welfare (CASCW) was established with Federal Title IV-E funding and a grant from the Bush Foundation. The goals of the CASCW include preparing graduate students to work in public social services; providing practitioners, policy makers, researchers, and educators with timely information and resources to strengthen the child welfare system's capacity to respond effectively to the families who use its services; and enhancing child welfare training.

nadid: 11431

Phone: (609) 528-8400

Fax: (609) 586-3679

Email: programs@chcs.org

The Center for Health Care Strategies (CHCS) is a health policy resource center dedicated to improving health care quality for low-income children and adults, people with chronic illnesses and disabilities, frail elders, and racially and ethnically diverse populations experiencing disparities in care.

nadid: 24797

Toll-Free: (800) 394-3366

Email: info@childwelfare.gov

Child Welfare Information Gateway connects professionals and the general public to information and resources targeted to the safety, permanency, and well-being of children and families. A service of the Children's Bureau, Administration for Children and Families, U.S. Department of Health and Human Services, Child Welfare Information Gateway provides access to programs, research, laws and policies, training resources, statistics, and much more.

nadid: 17904

Phone: (301) 306-7070

Toll-Free: (800) 233-4050

Fax: (301) 306-7090

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national, non-profit, organization providing education, advocacy and support for individuals with ADHD. In addition, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD.

nadid: 25154

Phone: (303) 831-7874

Phone: (303) 831-7932

Fax: (303) 831-4092

TTY: (303) 831-7932

Email: office@deafdove.org

Dove is an organization dedicated to providing services to Deaf, Hard of Hearing, Late-Deafened and Deaf-Blind victims of sexual assault and domestic violence. Dove's purpose is to provide free services and education to Deaf victims, victim service providers and the general public. Reach a DOVE advocate 24/7 via its 24 Hour Crisis Line (303-831-7874) or email: Hotline@deafdove.org

nadid: 24744

Phone: (919) 490-5577

Fax: (919) 490-4905

Families & Communities Rising, formerly Chapel Hill Training Outreach Project, is a Durham, North Carolina based nonprofit organization with locations in Durham, Orange and Chatham Counties of NC and programs that reach nationwide. FCR is a national provider of training and technical assistance services, audiovisual and print materials, and offers direct services to children, families and communities.

nadid: 23171

Phone: (505) 872-4774

Toll-Free: (888) 835-5669

Fax: (505) 872-4780

Family Voices is a national, nonprofit, family-led organization with the mission to support advanced health-care programs for all children and youth, particularly those with special health-care needs. Partnering with family leaders and professionals at the local, State, regional, and national levels since 1992, Family Voices focuses on enhancing health-care programs and policies and ensuring that health-care systems integrate the voices of families.

nadid: 27164

Phone: (202) 785-4585

Toll-Free: (800) 663-0327

Fax: (202) 466-6456

FASD United, formerly the National Organization on Fetal Alcohol Syndrome, is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected by fetal alcohol syndrome/fetal alcohol effect. FASD United is committed to raising public awareness of fetal alcohol syndrome and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities nationwide. NOFAS also operates a national clearinghouse for regional, State, and local fetal alcohol syndrome organizations.

nadid: 11011

Phone: (573) 280-2412

Email: President@GHF.LIFE

The Global Hydranencephaly Foundation provides individualized family support and advocacy services to families across the globe who have a member with hydranencephaly.

nadid: 29807

Phone: (303) 492-6283

Toll-Free: (866) 422-0422

Email: parentadvocate@handsandvoices.org

Hands & Voices is a nationwide organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them.

nadid: 24743

Phone: (714) 368-3689

Toll-Free: (888) LPA-2001

Email: info@lpaonline.org

The purpose of the Little People of America Adoption Committee (LPA) is to find a loving home for every dwarf child. The role of LPA is to act as a link between prospective parents and adoption agencies that represent dwarf children. LPA is not an adoption agency, but a referral source only. By outreaching to adoption agencies, doctors, hospitals, geneticists, and others, LPA is are able to locate available dwarf children for adoption and prospective parents who are interested in adopting them.

nadid: 11048

Phone: (612) 624-2097

Fax: (612) 624-9344

Email: ncset@umn.edu

The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.

nadid: 21743

Phone: (202) 272-2004

Fax: (202) 272-2022

TTY: (202) 272-2074

Email: ncd@ncd.gov

The National Council on Disability (NCD) is an independent Federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. NCD works to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

nadid: 21745

Phone: (952) 838-9000

Toll-Free: (800) 537-2237

Fax: (952) 838-0199

PACER Center, Inc. provides information, training, and assistance to parents of children and young adults with all disabilities; physical, learning, cognitive, emotional, and health. Its mission is to improve and expand opportunities that enhance the quality of life for children and youth with disabilities and their families.

nadid: 24734

Parent to Parent supports a national network of programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.

nadid: 30752

Phone: (804) 828-3876

TDD: (800) 828-1120

Fax: (804) 828-0042

Email: jmhall2@vcu.edu

General Scope: The Partnership for People with Disabilities, formerly known as the Virginia Institute for Developmental Disabilities (VIDD), is recognized by the Federal Administration on Intellectual and Developmental Disabilities (AIDD) as a university center for excellence in developmental disabilities. The Partnership currently operates more than 20 Federal and State programs, supporting individuals with disabilities and their families.

nadid: 13417

Phone: (877) 726-4727

Email: SAMHSAInfo@samhsa.hhs.gov

The mission of the Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is to facilitate the development and improvement of FASD prevention, treatment, and care systems in the United States by providing national leadership and facilitating collaboration in the field.

The FASD Center is a Federal initiative of the Substance Abuse and Mental Health Services Administration (SAMHSA), U. S. Department of Health and Human Services (HHS).

nadid: 13089

Toll-Free: (800) 772 1213

The Supplemental Security Income (SSI) program provides monthly payments to adults and children with a disability or blindness and who have income and resources below specified amounts.

nadid: 30242

Phone: (202) 534-3700

Toll-Free: (800) 433-5255

Fax: (202) 534-3731

Email: info@thearc.org

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

To locate an Arc chapter in or near your community, please see http://www.thearc.org/page.aspx?pid=2437.

nadid: 24742

Email: disability-pregnancy@brandeis.edu

The National Center for Disability and Pregnancy Research conducts multidisciplinary research, training, and education on reproduction, pregnancy, and disability, including reproductive health, sex education, prenatal health, childbirth, and more.

nadid: 30707

Phone: (513) 709-1751

The mission of the National Down Syndrome Adoption Network is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.

nadid: 30325

Phone: (781) 736-8415

Email: centerforparents@brandeis.edu

The National Research Center for Parents With Disabilities conducts research and provides training and technical assistance to improve the lives of parents with disabilities and their families.

nadid: 30706

Email: office@iassidd.org

The Special Interest Research Group on Parents and Parenting With Intellectual Disabilities (SIRG/PID) is the first and only world-wide group dedicated to the scientific study of intellectual disability. SIRG/PID is a scientific and interdisciplinary nongovernmental organization that promotes worldwide research and exchange of information on intellectual disabilities.

nadid: 30708

Phone: (510) 848-1112

Toll-Free: (800) 644-2666

Fax: (510) 848-4445

TTY: (510) 848-1005

Through the Looking Glass (TLG) is a nationally recognized center that offers research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is funded in part by the National Institute on Disability and Rehabilation Research (NIDRR), U.S. Department of Education. TLG was awarded a grant by the NIDRR to continue its work through the National Center for Parents With Disabilities and Their Families. The National Center continues TLG's overall mission of empowering parents and potential parents with disabilities by disseminating disability-appropriate information regarding parenting to parents, disability advocates, and legal, medical, intervention and social services providers.

nadid: 24592