Disabilities/Special Needs Organizations
Series: Related Organizations Lists
Author(s): Child Welfare Information Gateway
Includes organizations that provide information about services for children and parents with special needs. If you are aware of any others, please contact Child Welfare Information Gateway at OrganizationUpdates@childwelfare.gov. Inclusion on this list is for information purposes and does not constitute an endorsement by Child Welfare Information Gateway or the Children's Bureau.
Administration on Intellectual and Developmental Disabilities
1825 K St NW
National Autism Resource & Information Center
Washington, District of Columbia 20006
Phone: (202) 600-3480
Phone: (202) 401-4634
The major goal of the Developmental Disabilities Programs of the ADD is to partner with State governments, local communities, and the private sector to ensure that individuals with developmental disabilities and their families participate in the design of -- and have access to -- culturally competent services, support, and other assistance and opportunities that promote independence, productivity, and inclusion in the community. The programs address all facets of the life cycle: diagnosis, early intervention, therapy, education, training, employment, and community living and leisure activities.
ARCH National Respite Network and Resource Center
4016 Oxford Street
Annandale, Virginia 22003
Phone: (703) 256-2084
The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.
Association for Successful Parenting
PO Box 3502
Baltimore, Maryland 21214
Toll-Free: (800) 599-8810
A nonprofit dedicated to enhancing the lives of parents living with learning difficulties and their families. It brings together researchers, practitioners, and self-advocates to build the capacity of communities and families to support and improve outcomes for parents with intellectual disabilities. The association’s work mainly centers around education, advocacy at the local and national level, direct support for parents and professionals, and resource sharing.
Association of Administrators of the Interstate Compact on Adoption and Medical Assistance (AAICAMA)
727 15th St NW
Washington, District of Columbia 20005
Phone: (202) 403-7937
The Association of Administrators of the Interstate Compact on Adoption and Medical Assistance facilitates the administration of the ICAMA. The Compact is the legal mechanism by which member States regulate and coordinate the interstate delivery of services to children with special needs who are adopted pursuant to adoption assistance agreements. The Association provides technical and legal assistance, education and training, and materials on practice and policy issues.
Association of University Centers on Disabilities
1100 Wayne Avenue
Silver Spring, Maryland 20910
Phone: (301) 588-8252
Fax: (301) 588-2842
The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) promotes and supports the national interdisciplinary network of university centers on disabilities. The network includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs, and Intellectual and Developmental Disability Research Centers (DDRC). Through its members, AUCD serves as a resource for local, State, national, and international agencies, organizations, and policy makers concerned about individuals with developmental and other disabilities and their families.
1 East 33rd Street
New York, New York 10016
Toll-Free: (888) 288-4762
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.
Center for Advanced Studies in Child Welfare
University of Minnesota School of Social Work
205 Peters Hall, 1404 Gortner Avenue
St. Paul, Minnesota 55108
Phone: (612) 624-4231
Toll-Free: (800) 779-8636
Fax: (612) 624-3744
General Scope: The Center for Advanced Studies in Child Welfare (CASCW) was established with Federal Title IV-E funding and a grant from the Bush Foundation. The goals of the CASCW include preparing graduate students to work in public social services; providing practitioners, policy makers, researchers, and educators with timely information and resources to strengthen the child welfare system's capacity to respond effectively to the families who use its services; and enhancing child welfare training.
Center for Health Care Strategies, Inc.
200 American Metro Boulevard
Hamilton, New Jersey 08619
Phone: (609) 528-8400
Fax: (609) 586-3679
The Center for Health Care Strategies (CHCS) is a health policy resource center dedicated to improving health care quality for low-income children and adults, people with chronic illnesses and disabilities, frail elders, and racially and ethnically diverse populations experiencing disparities in care.
Child Welfare Information Gateway
330 C Street, S.W
Washington, District of Columbia 20201
Toll-Free: (800) 394-3366
Child Welfare Information Gateway connects professionals and the general public to information and resources targeted to the safety, permanency, and well-being of children and families. A service of the Children's Bureau, Administration for Children and Families, U.S. Department of Health and Human Services, Child Welfare Information Gateway provides access to programs, research, laws and policies, training resources, statistics, and much more.
Children and Adults with Attention Deficit/Hyperactivity Disorder
4221 Forbes Blvd
Lanham, Maryland 20706
Phone: (301) 306-7070
Toll-Free: (800) 233-4050
Fax: (301) 306-7090
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national, non-profit, organization providing education, advocacy and support for individuals with ADHD. In addition, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD.
PO Box 150449
Denver, Colorado 80215
Phone: (303) 831-7874
Phone: (303) 831-7932
Fax: (303) 831-4092
TTY: (303) 831-7932
Dove is an organization dedicated to providing services to Deaf, Hard of Hearing, Late-Deafened and Deaf-Blind victims of sexual assault and domestic violence. Dove's purpose is to provide free services and education to Deaf victims, victim service providers and the general public. Reach a DOVE advocate 24/7 via its 24 Hour Crisis Line (303-831-7874) or email: Hotline@deafdove.org
Families & Communities Rising
800 Eastowne Drive
Chapel Hill, North Carolina 27514
Phone: (919) 490-5577
Fax: (919) 490-4905
Families & Communities Rising, formerly Chapel Hill Training Outreach Project, is a Durham, North Carolina based nonprofit organization with locations in Durham, Orange and Chatham Counties of NC and programs that reach nationwide. FCR is a national provider of training and technical assistance services, audiovisual and print materials, and offers direct services to children, families and communities.
PO Box 37188
Albuquerque, New Mexico 87176
Phone: (505) 872-4774
Toll-Free: (888) 835-5669
Fax: (505) 872-4780
Family Voices is a national, nonprofit, family-led organization with the mission to support advanced health-care programs for all children and youth, particularly those with special health-care needs. Partnering with family leaders and professionals at the local, State, regional, and national levels since 1992, Family Voices focuses on enhancing health-care programs and policies and ensuring that health-care systems integrate the voices of families.
PO Box 251
Mclean, Virginia 22101
Phone: (202) 785-4585
Toll-Free: (800) 663-0327
Fax: (202) 466-6456
FASD United, formerly the National Organization on Fetal Alcohol Syndrome, is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected by fetal alcohol syndrome/fetal alcohol effect. FASD United is committed to raising public awareness of fetal alcohol syndrome and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities nationwide. NOFAS also operates a national clearinghouse for regional, State, and local fetal alcohol syndrome organizations.
Global Hydranencephaly Foundation
PO Box 1150
Silverdale, Washington 98383
Phone: (573) 280-2412
The Global Hydranencephaly Foundation provides individualized family support and advocacy services to families across the globe who have a member with hydranencephaly.
Hands and Voices
PO Box 3093
Boulder, Colorado 80307
Phone: (303) 492-6283
Toll-Free: (866) 422-0422
Hands & Voices is a nationwide organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them.
Little People of America Adoption Committee
Sonoma, California 95476
Phone: (714) 368-3689
Toll-Free: (888) LPA-2001
The purpose of the Little People of America Adoption Committee (LPA) is to find a loving home for every dwarf child. The role of LPA is to act as a link between prospective parents and adoption agencies that represent dwarf children. LPA is not an adoption agency, but a referral source only. By outreaching to adoption agencies, doctors, hospitals, geneticists, and others, LPA is are able to locate available dwarf children for adoption and prospective parents who are interested in adopting them.
National Center on Secondary Education and Transition
150 Pillsbury Drive SE
6 Pattee Hall
Institute on Community Integration/University of Minnesota
Minneapolis, Minnesota 55455
Phone: (612) 624-2097
Fax: (612) 624-9344
The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.
National Council on Disability
1331 F Street, NW
Washington, District of Columbia 20004
Phone: (202) 272-2004
Fax: (202) 272-2022
TTY: (202) 272-2074
The National Council on Disability (NCD) is an independent Federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. NCD works to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.
PACER Center, Inc.
8161 Normandale Boulevard
Bloomington, Minnesota 55437
Phone: (952) 838-9000
Toll-Free: (800) 537-2237
Fax: (952) 838-0199
PACER Center, Inc. provides information, training, and assistance to parents of children and young adults with all disabilities; physical, learning, cognitive, emotional, and health. Its mission is to improve and expand opportunities that enhance the quality of life for children and youth with disabilities and their families.
Parent to Parent
Parent to Parent supports a national network of programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.
Partnership for People with Disabilities
700 East Franklin Street, 1st Floor Box 843020
Richmond, Virginia 23219
Phone: (804) 828-3876
TDD: (800) 828-1120
Fax: (804) 828-0042
General Scope: The Partnership for People with Disabilities, formerly known as the Virginia Institute for Developmental Disabilities (VIDD), is recognized by the Federal Administration on Intellectual and Developmental Disabilities (AIDD) as a university center for excellence in developmental disabilities. The Partnership currently operates more than 20 Federal and State programs, supporting individuals with disabilities and their families.
SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence
5600 Fishers Lane
Rockville, Maryland 20857
Phone: (877) 726-4727
The mission of the Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is to facilitate the development and improvement of FASD prevention, treatment, and care systems in the United States by providing national leadership and facilitating collaboration in the field.
The FASD Center is a Federal initiative of the Substance Abuse and Mental Health Services Administration (SAMHSA), U. S. Department of Health and Human Services (HHS).
Social Security Administration
2100 M Street NW
Washington, District of Columbia 20037
Toll-Free: (800) 772 1213
The Supplemental Security Income (SSI) program provides monthly payments to adults and children with a disability or blindness and who have income and resources below specified amounts.
1825 K Street NW
Washington, District of Columbia 20006
Phone: (202) 534-3700
Toll-Free: (800) 433-5255
Fax: (202) 534-3731
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
To locate an Arc chapter in or near your community, please see http://www.thearc.org/page.aspx?pid=2437.
The National Center for Disability and Pregnancy Research
415 South Street, MS 035
Waltham, Massachusetts 02453
The National Center for Disability and Pregnancy Research conducts multidisciplinary research, training, and education on reproduction, pregnancy, and disability, including reproductive health, sex education, prenatal health, childbirth, and more.
The National Down Syndrome Adoption Network
Phone: (513) 709-1751
The mission of the National Down Syndrome Adoption Network is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.
The National Research Center for Parents With Disabilities
415 South Street, MS 035
Waltham, Massachusetts 02453
Phone: (781) 736-8415
The National Research Center for Parents With Disabilities conducts research and provides training and technical assistance to improve the lives of parents with disabilities and their families.
The Special Interest Research Group on Parents and Parenting With Intellectual Disabilities
The Special Interest Research Group on Parents and Parenting With Intellectual Disabilities (SIRG/PID) is the first and only world-wide group dedicated to the scientific study of intellectual disability. SIRG/PID is a scientific and interdisciplinary nongovernmental organization that promotes worldwide research and exchange of information on intellectual disabilities.
Through the Looking Glass
3075 Adeline St.
Berkeley, California 94703
Phone: (510) 848-1112
Toll-Free: (800) 644-2666
Fax: (510) 848-4445
TTY: (510) 848-1005
Through the Looking Glass (TLG) is a nationally recognized center that offers research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is funded in part by the National Institute on Disability and Rehabilation Research (NIDRR), U.S. Department of Education. TLG was awarded a grant by the NIDRR to continue its work through the National Center for Parents With Disabilities and Their Families. The National Center continues TLG's overall mission of empowering parents and potential parents with disabilities by disseminating disability-appropriate information regarding parenting to parents, disability advocates, and legal, medical, intervention and social services providers.