Disabilities/Special Needs Organizations

Disabilities/Special Needs Organizations

Series: Related Organizations Lists
Author(s): Child Welfare Information Gateway

Organizations that provide information about child welfare services for children with special needs. If you are aware of any others, please contact Child Welfare Information Gateway at OrganizationUpdates@childwelfare.gov. Inclusion on this list is for information purposes and does not constitute an endorsement by Child Welfare Information Gateway or the Children's Bureau.

Administration on Intellectual and Developmental Disabilities
1825 K St NW
Suite 1200
National Autism Resource & Information Center
Washington, District of Columbia 20006
Phone: (202) 600-3480
Phone: (202) 401-4634
The major goal of the Developmental Disabilities Programs of the ADD is to partner with State governments, local communities, and the private sector to ensure that individuals with developmental disabilities and their families participate in the design of -- and have access to -- culturally competent services, support, and other assistance and opportunities that promote independence, productivity, and inclusion in the community. The programs address all facets of the life cycle: diagnosis, early intervention, therapy, education, training, employment, and community living and leisure activities.
nadid: 11089
ARCH National Respite Network and Resource Center
4016 Oxford Street
Annandale, Virginia 22003
Phone: (703) 256-2084
The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.
nadid: 11103
Association of Administrators of the Interstate Compact on Adoption and Medical Assistance
727 15th St NW
12th floor
Washington, District of Columbia 20005
Phone: (202) 403-7937
The Association of Administrators of the Interstate Compact on Adoption and Medical Assistance facilitates the administration of the ICAMA. The Compact is the legal mechanism by which member States regulate and coordinate the interstate delivery of services to children with special needs who are adopted pursuant to adoption assistance agreements. Along with advocating State participation in the ICAMA, the Association provides technical and legal assistance, education and training, and materials on practice and policy issues.
nadid: 11082
Association of University Centers on Disabilities
1100 Wayne Avenue
Suite 1000
Silver Spring, Maryland 20910
Phone: (301) 588-8252
Fax: (301) 588-2842
The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) promotes and supports the national interdisciplinary network of university centers on disabilities. The network includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs, and Intellectual and Developmental Disability Research Centers (DDRC). Through its members, AUCD serves as a resource for local, State, national, and international agencies, organizations, and policy makers concerned about individuals with developmental and other disabilities and their families.
nadid: 11083
Autism Speaks
1 East 33rd Street
4th Floor
New York, New York 10016
Toll-Free: (888) 288-4762
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.
nadid: 29806
Center for Advanced Studies in Child Welfare
University of Minnesota School of Social Work
205 Peters Hall, 1404 Gortner Avenue
St. Paul, Minnesota 55108
Phone: (612) 624-4231
Toll-Free: (800) 779-8636
Fax: (612) 624-3744
General Scope: The Center for Advanced Studies in Child Welfare (CASCW) was established with Federal Title IV-E funding and a grant from the Bush Foundation. The goals of the CASCW include preparing graduate students to work in public social services; providing practitioners, policy makers, researchers, and educators with timely information and resources to strengthen the child welfare system's capacity to respond effectively to the families who use its services; and enhancing child welfare training.
nadid: 11431
Center for Health Care Strategies, Inc.
200 American Metro Boulevard
Suite 119
Hamilton, New Jersey 08619
Phone: (609) 528-8400
Fax: (609) 586-3679
The Center for Health Care Strategies (CHCS) is a health policy resource center dedicated to improving health care quality for low-income children and adults, people with chronic illnesses and disabilities, frail elders, and racially and ethnically diverse populations experiencing disparities in care.
nadid: 24797
Chapel Hill Training-Outreach Project, Inc.
800 Eastowne Drive
Suite 105
Chapel Hill, North Carolina 27514
Phone: (919) 490-5577
Fax: (919) 490-4905
The mission of the Chapel Hill Training-Outreach Project, Inc. (CHTOP) is to develop and deliver programs and strategies that will enhance the lives of children, youth and families. Of principal concern are families in poverty, families caring for the elderly, children with disabilities or chronic illness, and children at risk of abuse and neglect.
nadid: 23171
Child Abuse and Neglect Disability Outreach Project
555 S Sunrise Way
Suite 205
Spectrum Institute
Palm Springs, California 92264
Phone: (818) 230-5156
Toll-Free: 1-888-818-6298
General Scope: CAN/Do is the Child Abuse and Neglect Disabilities Outreach Project. Under funding from the California Governor's Office on Criminal Justice Planning (OCJP), CAN/Do is seeking to establish Statewide collaboration through meetings of a multi-agency Think Tank, to compile and disseminate "best practices" so that agencies and organizations can succeed in the mission of preventing the abuse of children with disabilities, and to improve data-gathering so that those who work with children with disabilities, and are concerned about child abuse, will know the size and scope of the problem.

Training Specific: One of CAN-Do's objectives is to provide State-of-the-art training. To achieve this goal, the CAN-Do Project is searching to identify the best training technologies on child abuse and children with disabilites. The goal is to create a state-of-the-art training system that can be customized and disseminated Statewide, and later nationwide. For more information about this training resource, see the CAN-Do website at http://disability-abuse.com/cando/abt.htm.
nadid: 11298
Child Welfare Information Gateway
Children's Bureau/ACYF
330 C Street, S.W
Washington, District of Columbia 20201
Toll-Free: (800) 394-3366
Child Welfare Information Gateway connects professionals and the general public to information and resources targeted to the safety, permanency, and well-being of children and families.

A service of the Children's Bureau, Administration for Children and Families, U.S. Department of Health and Human Services, Child Welfare Information Gateway provides access to programs, research, laws and policies, training resources, statistics, and much more.
nadid: 17904
Children and Adults with Attention Deficit/Hyperactivity Disorder
4221 Forbes Blvd
Suite 270
Lanham, Maryland 20706
Phone: (301) 306-7070
Toll-Free: (800) 233-4050
Fax: (301) 306-7090
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national, non-profit, organization providing education, advocacy and support for individuals with ADHD. In addition, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD.
nadid: 25154
Dove
PO Box 150449
Denver, Colorado 80215
Phone: (303) 831-7874
Phone: (303) 831-7932
Fax: (303) 831-4092
TTY: (303) 831-7932
Dove is an organization dedicated to providing services to Deaf, Hard of Hearing, Late-Deafened and Deaf-Blind victims of sexual assault and domestic violence. Dove’s purpose is to provide free services and education to Deaf victims, victim service providers and the general public.

24-hour Hotline is available via email to: Hotline@deafdove.org
nadid: 24744
Family Voices
PO Box 37188
Albuquerque, New Mexico 87176
Phone: (505) 872-4774
Toll-Free: (888) 835-5669
Fax: (505) 872-4780
Family Voices is a national, nonprofit, family-led organization with the mission to support advanced health-care programs for all children and youth, particularly those with special health-care needs. Partnering with family leaders and professionals at the local, State, regional, and national levels since 1992, Family Voices focuses on enhancing health-care programs and policies and ensuring that health-care systems integrate the voices of families.
nadid: 27164
Global Hydranencephaly Foundation
PO Box 1150
Silverdale, Washington 98383
Phone: (573) 280-2412
The Global Hydranencephaly Foundation provides individualized family support and advocacy services to families across the globe who have a member with hydranencephaly.
nadid: 29807
Hands and Voices
PO Box 3093
Boulder, Colorado 80307
Phone: (303) 492-6283
Toll-Free: (866) 422-0422
Hands & Voices is a nationwide organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them.
nadid: 24743
Kidpower Teenpower Fullpower International (Kidpower)
PO Box 1212
Santa Cruz, California 95061
Toll-Free: (800) 467-6997
Kidpower Teenpower Fullpower Internationalâ„¢ (Kidpowerâ„¢) is a global nonprofit organization dedicated to protecting people of all ages and abilities from bullying, violence, and abuse by empowering them with awareness, knowledge, and skills.

Kidpowerâ„¢ provides access to information and resources on bullying and child abuse prevention skills through its workshops, free online library, consultation, and publications. It also trains leaders in schools and other youth-serving organizations in how to incorporate Kidpower into their daily activities.
nadid: 24745
Little People of America Adoption Committee
617 Broadway
#518
Sonoma, California 95476
Phone: (714) 368-3689
Toll-Free: (888) LPA-2001
The purpose of the Little People of America Adoption Committee (LPA) is to find a loving home for every dwarf child. The role of LPA is to act as a link between prospective parents and adoption agencies that represent dwarf children. LPA is not an adoption agency, but a referral source only. By outreaching to adoption agencies, doctors, hospitals, geneticists, and others, LPA is are able to locate available dwarf children for adoption and prospective parents who are interested in adopting them.
nadid: 11048
National Center on Secondary Education and Transition
150 Pillsbury Drive SE
6 Pattee Hall
Institute on Community Integration/University of Minnesota
Minneapolis, Minnesota 55455
Phone: (612) 624-2097
Fax: (612) 624-9344
The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.
nadid: 21743
National Collaborative on Workforce and Disability for Youth
4301 Connecticut Avenue NW
Suite 100
c/o Institute for Educational Leadership
Washington, District of Columbia 20008-2304
Toll-Free: (877) 871-0744
TTY: (877) 871-0665
The National Collaborative on Workforce and Disability for Youth (NCWD/Youth) is a source of information about employment and youth with disabilities. NCWD/Youth assists State and local workforce development systems to better serve youth with disabilities.

NCWD/Youth is funded by a grant administered by the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor.
nadid: 21742
National Council on Disability
1331 F Street, NW
Suite 850
Washington, District of Columbia 20004
Phone: (202) 272-2004
Fax: (202) 272-2022
TTY: (202) 272-2074
The National Council on Disability (NCD) is an independent Federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. NCD works to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.
nadid: 21745
National Organization on Fetal Alcohol Syndrome
1200 Eton Court, NW
Third Floor
Washington, District of Columbia 20007
Phone: (202) 785-4585
Toll-Free: (800) 663-0327
Fax: (202) 466-6456
The National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected by fetal alcohol syndrome/fetal alcohol effect. NOFAS is committed to raising public awareness of fetal alcohol syndrome and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities nationwide. NOFAS also operates a national clearinghouse for regional, State, and local fetal alcohol syndrome organizations.
nadid: 11011
PACER Center, Inc.
8161 Normandale Boulevard
Bloomington, Minnesota 55437
Phone: (952) 838-9000
Toll-Free: (800) 537-2237
Fax: (952) 838-0199
PACER Center, Inc. provides information, training, and assistance to parents of children and young adults with all disabilities; physical, learning, cognitive, emotional, and health. Its mission is to improve and expand opportunities that enhance the quality of life for children and youth with disabilities and their families.
nadid: 24734
Partnership for People with Disabilities
700 East Franklin Street, 1st Floor Box 843020
Suite 140
Richmond, Virginia 23219
Phone: (804) 828-3876
TDD: (800) 828-1120
Fax: (804) 828-0042
General Scope: The Partnership for People with Disabilities, formerly known as the Virginia Institute for Developmental Disabilities (VIDD), is recognized by the Federal Administration on Intellectual and Developmental Disabilities (AIDD) as a university center for excellence in developmental disabilities. The Partnership currently operates more than 20 Federal and State programs, supporting individuals with disabilities and their families.
nadid: 13417
SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence
5600 Fishers Lane
Rockville, Maryland 20857
Phone: (877) 726-4727
The mission of the Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is to facilitate the development and improvement of FASD prevention, treatment, and care systems in the United States by providing national leadership and facilitating collaboration in the field.

The FASD Center is a Federal initiative of the Substance Abuse and Mental Health Services Administration (SAMHSA), U. S. Department of Health and Human Services (HHS).
nadid: 13089
The Arc
1825 K Street NW
Suite 1200
Washington, District of Columbia 20006
Phone: (202) 534-3700
Toll-Free: (800) 433-5255
Fax: (202) 534-3731
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

To locate an Arc chapter in or near your community, please see http://www.thearc.org/page.aspx?pid=2437.
nadid: 24742
Through the Looking Glass
3075 Adeline St.
Suite 120
Berkeley, California 94703
Phone: (510) 848-1112
Toll-Free: (800) 644-2666
Fax: (510) 848-4445
TTY: (510) 848-1005
Through the Looking Glass (TLG) is a nationally recognized center that offers research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.

TLG is funded in part by the National Institute on Disability and Rehabilation Research (NIDRR), U.S. Department of Education. TLG was awarded a grant by the NIDRR to continue its work through the National Center for Parents With Disabilities and Their Families. The National Center continues TLG's overall mission of empowering parents and potential parents with disabilities by disseminating disability-appropriate information regarding parenting to parents, disability advocates, and legal, medical, intervention and social services providers.
nadid: 24592
Women's Refugee Commission
15 West 37th St
9th floor
New York, New York 10018
Phone: (212) 551-3115
The mission of the Women's Refugee Commission is to improve the lives and protect the rights of women, children and youth displaced by conflict and crisis. The Commission researches their needs, identifies solutions, and advocates for programs and policies to strengthen their resilience and drive change in humanitarian practice.
nadid: 25232