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Services for Families and Caregivers of Children and Youth With Disabilities
Find resources for families and caregivers raising children with disabilities to help in accessing needed services, including State and local examples.
State by State Disability Resources
GrandsPlace
Offers a State-by-State database of resources for grandparents that includes names, addresses, and more contact information for disability organizations.
State Councils on Developmental Disabilities
U.S. Department of Health and Human Services, Administration for Children and Families, Administration on Developmental Disabilities
Lists federally funded programs that promote public policies about self-determination, integration, and inclusion for people with developmental disabilities.
Yellow Pages for Kids With Disabilities
Yellow Pages for Kids
Lists each State's consultants, psychologists, tutors, therapists, coaches, and other professionals who serve children with disabilities.
Benefits for Children With Disabilities
Social Security Administration
Provides an overview of specific support programs, services, and benefits for children with disabilities.
Family
National Collaborative on Workforce and Disability for Youth
Presents useful information and resources for families of youth with disabilities.
Grandparent Caregivers to Children with Developmental Disabilities: Added Challenges
Kinney, McGrew, & Nelson (2003)
In Working with Custodial Grandparents
View Abstract
Discusses life planning as an important responsibility for grandparent caregivers of grandchildren with disabilities.
Grandparents Raising Grandchildren With Developmental Disabilities
Strength for Caring
Examines grandparents' demographics; reasons for assuming the caregiver role; their needs, concerns, and challenges; supportive networks; and more.
The Grandparent's and Other Relative Caregiver's Guide to Raising Children With Disabilities: What You Need to Know to Give the Child You Are Raising a Fair Start (PDF - 430 KB)
Children's Defense Fund (2002)
Explains how grandparents and other relative caregivers can access services for children with disabilities.
National Information Center for Children and Youth With Disabilities
Lists articles and information about disorders and disabilities, resources, parent support groups, and services.
State and local examples
A Report on Respite Services for Grandparents Raising Grandchildren in Hawaii (PDF - 105 KB)
State of Hawai'i Department of Health, Executive Office on Aging (2009)
Examines issues related to providing respite services to grandparents raising grandchildren in the State of Hawaii.
Grandparents Raising Grandchildren: Financial Assistance
University of Florida, Institute of Food and Agricultural Sciences Extension
Provides grandparents with information about financial assistance that is available in the State of Florida for grandfamilies.
Grandparents Raising Grandchildren With Disabilities in South Carolina(PDF - 631 KB)
South Carolina Office on Aging
Describes various developmental disabilities and offers information on health insurance, services, and Federal programs that can assist caregivers.